| 2010 |
Presentations:
Cancer Australia's launch of 'Building Cancer Support Networks' Grants (Canberra, Feb10)
Clinical Trials: Reviewing a protocol - a consumers perspective. ANZGOG Conference, Noosa Qld, Feb10
Forums/Meetings/Workshops attended:
•
Open Disclosure (Adelaide, 3 Mar 2010)
Media:
Interview with Cancer Voices SA (20 Jan 2010) LIVESTRONG Blog
Riding for their lives (20 Jan 2010) ABC 7.30 Report
Brush with a legend (Jan 2010) Eastern Courier
Armstrong an inspiration to those with cancer (Jan 2010) ABC News
Cancer Voices SA Cycling Team
|
| 2009 |
Advocacy on issues:
•Concerns were raised about management of VRE and multi-drug-resistant organism risk for oncology patients. A draft Position Statement has been presented to the Safety and Quality in Health Care Consumer and Community Advisory Group.
•Monitoring implementation of Communio, Delaney and Kowalick report recommendations on cancer services, and reviews following the radiotherapy and chemotherapy treatment incidents.
•Multidisciplinary team care is being progressed and integrated into cancer pathways, through representation via the Cancer Clinical Network (CCN), and Holistic care via CCN Complementary Therapies Working Group (CTWG).
Cancer Conversations:
Cancer Voices SA held 12 Cancer Conversations during Apr-May, and reports of these Conversations have been submitted to the Global Cancer Initiative, Campaign 2 Control Cancer. Ashleigh Moore represented Cancer Voices SA at the Go Public:Campaign 2 Control Cancer Forum in Ottawa in September.
Global Cancer Campaign:
In June, Cancer Voices SA submitted 4 commitments to the LIVESTRONG Global Cancer Campaign.
Cancer Voices SA representatives received travel scholarships from the Lance Armstrong Foundation to attend the Global Cancer Summit in Dublin
in August.
Ongoing representation on:
• SA Cancer Clinical Network (CCN) Steering committee and the following subcommittees/working groups:
Optimising Cancer Care subcommittee
Cancer Information subcommittee
Infrastructure subcommittee
Radiation Oncology subcommittee
Radiotherapy Performance Indicators working group,
Complementary Therapies working group (chaired by CVSA Exec)
• SA Quality and Safety Council in Healthcare Consumer Advisory Committee.
• Cancer Voices Australia (CVA) Board.
• Cancer Australia - National Consumer Advisory Committee.
• EdCAN - Cancer Nurses Education Project.
• CareSearch - Palliative Care National Advisory Group
Forums/Meetings/Workshops attended:
•
LIVESTRONG Global Cancer Campaign, Launch (Adelaide, Jan 09)
•
Cancer Advocacy Training (Adelaide, Mar 09)
• National Institute of Complementary Medicine NICM Forum (Jun 09)
• Cancer Voices SA Annual General Meeting (Jul 09)
• Stall at Disability and Wellness Expo (Aug 09)
•
LIVESTRONG Global Cancer Cancer Summit (Dublin, Aug 09)
•
Go Public: Campaign to Control Cancer Forum (Ottawa, Sep 09)
• 'Patient Safety First' Workshop (Oct 09)
• 'Consumer Leadership and Community Engagement' Health Consumers Alliance Workshop (Nov 09)
Presentations:
Cycling In Medicine Conference (Jan 09)
Rotary - Adelaide Branch (Feb 09)
Asbestos Diseases Society of SA ADSSA (Mar 09)
Payneham Prostate Cancer Support and Awareness Group (Jun 09)
Aboriginal Healthcare Workers Forum (Jul 09)
Colostomy Association of SA CASA (Sep 09)
Tailem Bend 'Cancer- meeting the challenge' Forum (Nov 09)
St John's Ambulance Cadets - Pt Lincoln St John SA (Dec 09)
Media:
Cancer Voices SA cycling for cancer awareness:
TV: A Current Affair Ch9 Adelaide (Jan 09),
Armstrong inspires cancer sufferers (March 09)Australian Cyclist
Spreading the Cancer Message (March 09) Bicycling Australia
Chance for 7100 riders to ride like Lance Armstrong in Challenge Tour (23 Jan 09) - The Advertiser article and video
Cancer Voices SA team training( 18 Jan 09 ) - see ride photos
In Lance's Shadow ( 16 Jan 09 ) - Messenger Newspaper
Cancer Voices SA Cycling Team
- 123 riders in Tour Down Under Mutual Community Challenge ride,
- 20+ riders in Savings & Loans Coast to Coast ride, and 11 volunteers helped BikeSA
- 70+ members registered (with BikeSA) in Cancer Voices SA cycling team.
Cancer Voices SA Soccer Team
Soccer team participates in the inaugural 'Cancer Cup'.
Cancer Research
Consumers involved in research proposal development and funding reviews.
 Top
|
2008 |
Advocacy on issues:
• Radiotherapy under-dosing incident at the Royal Adelaide Hospital
•Chemotherapy over-dosing at the Womens and Childrens Hospital
• Coordinated, holistic and multi-disciplinary team approach to cancer care, plus:
Raise awareness of consumer interest in ‘integrated medicine’ with complementary therapies; and Need for services including support after treatment has ended, support for carers after the patient has passed away, legal/financial counselling (eg powers of attorney, wills, superannuation), sexual/sexuality issues, help for patients with a young family etc.
Ongoing representation on:
• SA Cancer Clinical Network (CCN) Steering committee and the following subcommittees/working groups:
Optimising Cancer Care subcommittee
Cancer Information subcommittee
Infrastructure subcommittee
Radiation Oncology subcommittee
Radiotherapy Performance Indicators working group,
Complementary Therapies working group (chaired by CVSA Exec)
• SA Quality and Safety Council in Healthcare Consumer Advisory Committee.
• Cancer Voices Australia (CVA) Board.
• Cancer Australia - National Consumer Advisory Committee.
• EdCAN - Cancer Nurses Education Project.
• CareSearch - Palliative Care National Advisory Group
Forums/Meetings/Workshops attended:
• Clinical Oncology Society of Australia - Consumer Forum (Nov 08, Sydney).
• Consumer Health Forum and Medicines Australia advocacy workshop for health consumer organisations (Nov 08, Canberra).
• National Institute of Complementary Medicine – Forum on information production, coordination, dissemination (Sep 08, Sydney).
• Workshop- Improving the availability, access and quality of cancer information for clinicians and consumers (July 08, Adelaide).
• CaNET National Cancer Network workshops.
Presentations:
Southern Fleurieu Cancer Network - Launch
Cancer Australia - CanNet Multi-disciplinary Care Forum
Cancer Council SA - Support Group Leaders Development Forum
Southern Fleurieu Cancer Network - Update
Media: (see links)
Radiotherapy incident: Newspapers, TV news, ABC Stateline program, radio.
Chemotherapy dosing incident: Newspapers, radio.
CVSA cycling for cancer awareness: newspapers.
Documents:
CVSA Strategic Plan and Work Plan 2008-2010 (Feb 08)
CVSA Policies: (Feb 08) Actions Policy, Information Management Policy, News-Media and Speaker Policy, Representatives on Committees Policy, Rules of Incorporation,Website Content Policy.
Radiotherapy benchmarks for cancer treatments, from the consumers perspective. (to CCN, Apr 08)
Integrative oncology and Complementary therapies for cancer care in Australia and overseas - CVSA background paper (to CCN, Jun 08).
Cancer Advocacy Groups and Pharma Funding: CVSA discussion paper (to CVA, Jun 08).
RAH cancer patient’s Radiotherapy dosing errors – CVSA concerns (to Dr Tony Sherbon, July 08).
RAH radiotherapy incident – CVSA concerns (to Prof Delaney, Aug 08).
Newsletters:
CVSA Raising a Voice Bulletin (Jun, Aug, Dec 08)
Regular CVSA updates for Cancer Voices Australia newsletters and ‘Mosaic’, The Cancer Council SA Support Groups newsletter.
Top |
